Terms and Privacy Notice


Please read and accept the following terms and conditions before using any of the services on https://co-creationnetwork.com.

The first section provides a short overview of the full terms below.

Yorkshire and the Humber Leadership Academy operates the Co-Creation Network website to allow the site’s content and services to be freely available as far as possible. Yorkshire and the Humber Leadership Academy uses its best efforts to ensure the accuracy and reliability of information on this website. However, no guarantees are made that the information contained on this website or associated, or linked to websites is accurate, complete and current at any given time. Information presented on this website or associated sites may change at any time. Any views expressed on this website are those of the writer and not of Yorkshire and the Humber Leadership Academy. Any information appearing on this website is issued as general information and is not warranted by Yorkshire and the Humber Leadership Academy, or any other health organisation, nor should it be taken as advice. No responsibility can be accepted by Yorkshire and the Humber Leadership Academy or any other health organisation for action or inaction as a result of information contained on this website. This website is not intended in any way to replace the advice of your doctor. Specific advice should be sought in specific situations from a properly qualified health worker.


The Co-Creation Network is a free to join, UK hosted community platform based on open source and open standards portal technology. It supports Communities of Practice, collaboration and the sharing of information and ideas across health and social care from all members. Members do not need to work in health or social care to join; in fact we actively encourage patient and public involvement in all of our Communities of Practice.
For successful collaboration to happen, we expect our members to:

  • Sign in regularly
  • Complete their profiles
  • Actively and regularly contribute to group and general discussion
  • Share knowledge and expertise willingly
  • Take responsibility for all content they upload and consider responsibly the information they share
  • Receive member update emails from us (this excludes your own notifications, which you can manage within the site)
  • Encourage colleagues to use the Co-Creation Network
  • Attend Network-wide (Basecamp) events where possible
  • Attend meetings (virtual or real) organised by the Community (or Communities) of Practice they are part of where possible

We do not expect our members to:

  • Upload inappropriate information and content they are unauthorised to publish
  • Share confidential, identifiable patient data
  • Behave in a manner that is deemed inappropriate for a networking site or illegal
  • Registered Users or unregistered website visitors may report inappropriate content or behaviour by contacting us.

Membership of some Co-Creation Network Communities may be subject to approval by Community Facilitators or designated Community Admins.

The Co-Creation Network is resourced by Yorkshire and the Humber Leadership Academy.


We observe the right to amend, modify or supplement these Terms from time to time at our discretion.

By accessing the Co-Creation Network website, you acknowledge that you have read and accepted the Terms and that you are bound by them, whether or not you are a Registered User of the Co-Creation Network website.

If you are using the Service on behalf of a public authority, a company or any other legal entity you are bound by these Terms, even if that organisation has its own separate agreement with us.



Any information or data added into the Service by You or by Users not limited to information, data, text, software, photographs, graphics, messages, tags, ideas, concepts, tags, forum posts, datasets, techniques and/or any other material generated by Us or Users.

Registered User(s)

Any person registered on the Co-Creation Network Website.


The Co-Creation Network is a free to join, UK hosted community platform based on open source and open standards portal technology. It supports Communities of Practice, collaboration and the sharing of information and ideas across health and social care from all members. Members do not need to work in health or social care to join; in fact we actively encourage patient and public involvement in all of our Communities of Practice.

We provide a rich collection of collaboration tools and services including but not limited to discussion forums, blogs, wikis, news feeds, email alerts, instant messaging, direct messaging, calendars, ideas management, polls, user ratings, tagging and document libraries.

Service Description

The capabilities of the Service as specified by Us which are subject to change from time to time at our discretion.

Service Level

The service levels in respect of Our provision of the Service as specified in the Terms which may vary from time to time.


The terms and conditions set out herein.


Any person, registered or otherwise, accessing whole or any part of the Service.


The individual, whether or not a representative of a company or organisation, at whose request We provide the Service under licence on these Terms.


The Co-Creation Network website operated by Yorkshire and the Humber Leadership Academy.


By registering to use the Service we grant you a limited, revocable, non-exclusive, non-assignable, non-sublicenseable license to use the Service, through a generally available web browser, mobile device or authorized application (but not through scraping, spidering, crawling or other technology or software used to access data without our express written consent), subject to these Terms.

You are responsible for making all arrangements necessary for you to have access to the Service. We cannot guarantee that the transmission of any information over your internet connection will be secure nor can we guarantee that the Service will be compatible with any or all hardware and software that you may use to visit the Service.

Access to, and the use of, some parts of the Service (including Content) may be restricted to Registered Users or selected Registered Users only  (e.g. Facilitators or Admins of Communities to control access to their Communities) and you may require their prior approval to join certain Communities.

We may, at our sole discretion, refuse to register a user or to limit access to all or part of the Service to certain users, or terminate the membership of a Registered User without providing reasons for doing so.

We reserve the right to withdraw, suspend or amend access to all or any part of the Service or cease its operation temporarily or permanently at any time without notice.

We reserve the right to delete or unsubscribe members’ website accounts following inactivity of one year or more. Members may recreate their account at any time.

Use of the Service commercially or for commercial gain is prohibited and in serious breach of these Terms; this includes and is not limited to commercial activity and the advertising of products and services.


We will use reasonable endeavours to ensure that the Service is accessible 24 hours per day on an “as is” and “as available” basis. We give no warranties or guarantees that the Service will meet particular levels of availability or functionality, however we will endeavour to make sure that lack of access to the Service will be addressed as soon as possible during Yorkshire and the Humber Leadership Academy’s usual working hours (Monday-Friday 9am-5pm).

We reserve the right from time to time, and at any time, to modify or discontinue the Service (or any part thereof) with or without prior notice and You agree that We shall not be liable to You or to any third party as a result of Our modification of the Service.

We expect to provide updates to the Service, and to perform routine maintenance from time to time. These may involve a small period of time where the Service is unavailable. Service announcements will be posted on the website, @CCNetworkcom (Twitter) and via the Co-Creation Network e-Newsletter sent to voluntary subscribers as far as it is possible to do so.

In the event of unscheduled or emergency maintenance for security or any other reason, the Service may be unavailable for a period of time with no advance warning.

We may establish general practices and limits concerning the use of the Service, including the amount of disk space, activity, bandwidth, or any other resource available (including Helpdesk availability) in order to preserve the functionality of the Service and its availability to other Users.

We shall be entitled to subcontract the performance of all or part of the Service and its support activities in order to comply with Our obligations under these Terms.

The Service may contain links to third party websites that are not owned or controlled by Us. Any such links are provided solely for Your convenience and We have no control over or responsibility for them. It is Your responsibility to review any applicable terms or privacy policy of any website provided by, or any application used by a third party before using it or sharing any information with it. We are not responsible for and do not endorse any features, content, advertising, products or other materials on or available from websites or applications provided by third parties. Any use or access of such links is at Your sole risk.


Although you register to use Service as an individual You are participating in your work capacity. Therefore, please make sure that you are aware of, and comply with, your employer’s information and other policies regarding participating in collaboration platforms with access to social media tools.

In order to use certain aspects of the Service you must complete the registration form available via the Service, or have access approved by a Community of Practice Facilitator/ Admin at their discretion. You can register here.

Some of the information you supply when registering for the Service will be available to other Registered Users including; your username, your name, your answers volunteered for our registration questions, any social media profile information you volunteer.

For purposes of service messages and notices about the Service, we may place information on pages across the Service to alert you to certain changes such as modifications to these Terms. Alternatively, notice may consist of an email from us to an email address associated with your account, even if we have other contact information. You also agree that we may communicate with you through your account or through other means including email and newsletter about your account or services associated with the Service. You acknowledge and agree that we shall have no liability associated with or arising from your failure to maintain accurate contact or other information, including, but not limited to, your failure to receive critical information about the Service.


We collect personal information about you when you register to use the Service and as part of your use of the Service. We have explained what this information is, what we do with it, and who we share it with and other related matters such as Cookies in more detail in our Privacy Policy.

You should read our Privacy Policy carefully before you use the Service as it is incorporated into these Terms by reference, and governs our treatment of any information, including personally identifiable information you submit to us. Certain information, statements, data, and content (such as photographs) which you may submit to the Service, or Groups you choose to join might, or are likely to, reveal your gender, ethnic origin, nationality, age, and/or other personal information about you.

You acknowledge that your submission of any information, statements, data, and content to us is voluntary on your part and that the Service may process such information, within the terms of our Privacy Policy.

You own the information which you provide to us when you register as a user.  You may ask us to delete it at any time unless you have shared information or content with other users and Registered Users and they have not deleted it, or the information has been copied and stored by other users.  You are responsible for ensuring that your personal information is accurate and up-to-date.

The profile that you create when you become a Registered User will become a part of the Service and, apart from the information which you licence to us, is owned by us.  However, as between you and other users, it belongs to you.  You agree that you will:

  1. keep your password secure and confidential;
  2. not allow anyone else to use your account;
  3. not use anyone else’s account;
  4. not sell, trade or transfer your account to anyone else; and
  5. not charge anyone for access to or the use of any part of the Service or Content on it.

You are responsible for anything which happens on or through your account until you either close it down, or prove to us that your account’s security was compromised for reasons which were not your fault.

We comply with all relevant data protection legislation and regulations, including but not limited to the Data Protection Act 1998.

We reserve the right to give your personal information and Content to a third party in accordance with our Privacy Policy and without your consent where we believe that such disclosure is:

  1. required by law; or
  2. necessary to assist in the prevention; or
  3. detection of any criminal action (including fraud) or is in the overriding public interest and is permitted by law.


If you know or suspect that your password has been disclosed to another person you must immediately contact us to let us know and change your password. We have the right to disable your user name and password at any time if in our opinion we believe your account’s been compromised or if you have failed to comply with any of the provisions of these Terms.


We allow you access to the Service as a Registered User on the following terms, which you agree:

you provide accurate, current and complete information about yourself on any registration forms on the Service (“Registration Data“);

  1. you only use the Service to post, use or send content and messages that comply with our instructions and which are legal (in respect of the law applicable in England and Wales, Scotland, Northern Ireland and in any country from which it is posted) and appropriate to the Service;
  2. you maintain the security of your user name and password;
  3. you maintain and promptly update the Registration Data, and any other information you  provide to us, to keep it accurate, current and complete; 
  4. if you cease to work within the organisation which you indicated at the time of registration you worked for, you must immediately update your Registration Data;
  5. you take responsibility for all actions taken under your username and password; 
  6. you do not create additional registered user accounts for the purpose of abusing the functionality of the Service, or other Users;
  7. you do not seek to pass yourself off as another person or user; and 
  8. you comply with these Terms.

You must not do any of the following:

  1. defame, abuse, harass, stalk, intimidate, threaten or otherwise violate the legal rights (such as rights of privacy or intellectual property rights where applicable) of others;
  2. impersonate any other person or entity, whether actual or fictitious or falsely state or otherwise misrepresent yourself, your age or your affiliation with any person or entity or use or attempt to use another Registered User’s account;
  3. upload, post, transmit, share or otherwise make available any content that we deem to be obscene, indecent, unlawful, harmful, threatening, defamatory, infringing, abusive, inflammatory, harassing, vulgar, fraudulent, hateful, or racially, ethnically, sexually or otherwise objectionable;
  4. upload, post, transmit, share or otherwise make available any material which contains a statement which you know or believe, or have reasonable grounds for believing, that members of the public to whom the statement is, or is to be, published are likely to understand as a direct or indirect encouragement or other inducement to the commission, preparation or instigation of acts of terrorism;
  5. upload, post, transmit, share or otherwise make available any unsolicited advertising (although you may upload non-commercial events you think may be of interest to other Registered Users acting in their professional capacity), unauthorised advertising, solicitations, promotional materials, “junk mail”, “spam”, “chain letters”, “pyramid schemes”, or engage in any other form of solicitation;
  6. upload, post, transmit, share or otherwise make available content unless you are sure there are no restrictions (such as copyright) on your ability to do so;
  7. upload, post, transmit, share or otherwise make available any material that contains software viruses or any other computer code, corrupted files, files or programs designed to interrupt, destroy or limit the functionality of any computer software or hardware or telecommunications equipment;
  8. delete any required author attributions, legal notices or proprietary designations or labels in, or falsify the origin or source of, any material that is uploaded; 
  9. use automated scripts to collect information from or in any way seek to change the Service or otherwise interact with the Service; 
  10. register for more than one user account, register for a user account on behalf of an individual other than yourself, or register for a user account on behalf of any group or entity; or
  11. upload, post, transmit, share or otherwise make publicly available on the Service any private, personal or sensitive information of, or concerning, any other party, including, addresses, phone numbers, email addresses, and credit card numbers without first having obtained their written consent to this.

We will determine, in our sole discretion, whether a contribution to the Service or any other activity breaches these Terms.

Any Registered User or unregistered visitor to the Service may report the above via email to Yorkshire and the Humber Leadership Academy directly here, or Registered Users may use the ‘Report User’ function available on the website. Further investigation into the reported User’s conduct may be required before action is taken.


The majority of the information, data, text, software, photographs, graphics, messages, tags, ideas, concepts, tags, forum posts, datasets, techniques and/or any other material (“Content“) on the Service is generated by our Registered Users.

Content may be out of date and we make no commitment to update or remove Content. We do not warrant the accuracy, completeness, integrity or quality of any Content on the Service.

Content is for information only and cannot be regarded as constituting advice or recommendations (professional or otherwise) and should not be relied on without taking independent advice. You are solely responsible for any decisions you take based on Content.  We disclaim all liability and responsibility arising from any reliance placed on Content by any User to the Service, or from any reliance placed on Content by anyone who may be informed of any of its contents.

When you use the Service you will be able to share Content with us and with certain other Registered Users and will have access to Content provided by certain other Registered Users. You are solely responsible for Content you post or make available on the Service. Any Content you display on the Service is done so entirely at your own risk. You acknowledge that

Content posted on the Service may be viewable by all other Registered Users and will be publicly available.

When you make Content available to us and other Users, you are representing and warranting that you are entitled to submit that information, that it is accurate, not confidential and that you making it available it does not violate any contractual or statutory restrictions or third party rights, including copyright.  It is your responsibility to make sure that Content is accurate and (where appropriate) up-to-date.

You may also be able to communicate with other Registered Users through the Service and you acknowledge that you are solely responsible for those communications. We are not responsible for the behaviour or activities of Registered Users.

The Service offers various ways for you to post your observations and comments on designated topics. It also allows users to share information by allowing them to post updates, including links to news articles and other Content to other parts of the site. Registered Users can apply to create Groups; however, we may (in our sole discretion) close or transfer Groups, or remove Content if the Content violates this Agreement or others’ intellectual property rights or has been inactive for a period of time. Ideas and information that you post and share may be seen and used by other Users. We cannot guarantee that other Users will not use the ideas and information that you share on the Service. Therefore, if you have an idea or information that you would like to keep confidential or don’t want others to use, or that is subject to third party rights that may be infringed by your sharing it, do not post it to any Group, or elsewhere on the Service.  We are not responsible for any other person’s misuse or misappropriation of any Content or information you post on the Service.

We recommend that you do not include your home address, telephone number or other sensitive personal information in any messages you send via the Service and that you do not post any Content on the Service unless you are willing for it to be shared with other Registered Users and made public. Please make sure you have complied with your employer’s information disclosure and confidentiality policies when posting Content on the Service.

We are legally required to comply with Freedom of Information Act 2000 (“FOI”) legislation.


By making Content available on the Service you grant us (and our agents, successors and assignees) an irrevocable, fully paid-up and royalty-free, perpetual licence (with the right to sub-licence and to assign) to use, prepare derivative works of, improve, distribute, publish, reproduce, modify, adapt, remove, retain, add, process, analyse, use and commercialise your

Content via the Service in any way now known or discovered in the future for the following purposes:

  1. providing the Service to users and promoting the specific community or other part of the Service to which such Content was made available;
  2. so that the Content can be made available and be used, viewed and downloaded by those Registered Users that have access to the specific community or other part of Service to which such Content was made available.

As a Registered User, you agree to comply with these Terms, and agree to acknowledge the source of the Content when sharing it on the Service and retain any proprietary notices which may apply to it.


The Service includes our copyrights and intellectual property rights and, except for the limited license granted to you in 3. ACCESS TO THE SERVICE, we reserve all of our intellectual property rights in and associated with the Service.  This includes all Co-Creation Network logos and other Yorkshire and the Humber Leadership Academy trademarks, service marks, graphics and logos used in connection with the Service. Other trademarks and logos used in connection with the Service may be the trademarks of their respective owners. These Terms do not grant you any right or license in respect of any such trademarks and logos.

All copyright, trademarks, design rights, database rights and other intellectual property rights in or relating to Our Content on the Service (but not Content supplied by Users) belongs to us or our third party licensors.  You may access, use and reproduce Our Content (excluding any software code) solely for the purposes of your use of the Service.

You may also print, copy or download Our Content provided always that:

  • you acknowledge us as the source of Our Content;
  • all titles credits and URLs are included; and
  • you comply with any legal notice contained in Our Content.

Permission to use Our Content is revocable by us at any time.

You may not attempt to modify, translate, adapt, edit, copy, decompile, disassemble, or reverse engineer any software used or provided by Us in connection with the Service, except as permitted by law.


By using the Service you accept that you will be able to access Content posted by other Registered Users in an unedited and unrestricted form. We reserve the right, but have no obligation, to monitor the use of the Service. Facilitators of Groups may also monitor your use of that community. We will not be responsible as author, editor or publisher of any Content.

We reserve the right to promptly, without notice to you, reject, remove, or edit any Content on the Service without any liability on our part. Facilitators of Groups may also do this where the Content is posted in the community they manage.

If you encounter any content or behaviour in connection with the use of the Service which you think is unacceptable you should flag it as inappropriate and contact us to report it. We will then review the content or behaviour and decide whether it complies with the Terms and we will deal with it in our discretion.

Where we consider it appropriate, we (or the facilitator of the applicable Group) will endeavour to contact you to inform you that a complaint has been received in relation to Content which you have uploaded, the action that we have taken, our evaluation of the allegation, and what steps (if any) we require you to take.


We do not verify the identity of our Registered Users and you should not assume that the details of Registered Users are accurate. We are not liable for false or misleading statements by Registered Users.

We do not warrant that the Service is uninterrupted or error free or free of viruses, worms, Trojan Horses or technical defects of any description‚ and we accept no responsibility for any technical problems arising from your use of the Service.

Unless we specifically state otherwise, we provide the Service to you without any conditions, warranties, or guarantees which are expressly excluded to the extent permitted by law.


Nothing within these Terms operates so as to exclude, limit or restrict our liability for death or personal injury caused by our negligence, for fraudulent misrepresentation or for any other matter for which it would be illegal for us to attempt to limit or exclude our liability.

We will not be liable for:

  • any indirect, consequential or special losses or damages or any loss of profits, data or income arising in contract, tort (including negligence) or otherwise arising out of or in connection with your use of the Service;
  • all conditions, warranties and other terms which might otherwise be implied by statute, common law or the law of equity; and
  • any loss, damage, expense, costs, delays or other liability whatsoever (including without limitation any financial losses such as loss of profit) which you may incur as a result of any event beyond our reasonable control (including without limitation any failure of transmission, communication, computer or other facilities or your inability to access the Service for any reason or any failure, error or delay in the sending or receiving of any notice or communication or instruction through the post or any electronic medium or any virus infection or denial of service attack).

In the event that you have or believe that you may have any right, claim or action against any other Registered User from that Registered User’s use of the Service, you agree to pursue such right, claim or action independently of and without recourse to us, and you release us and you will procure that any third party releases us from all claims, loss, damage expense, costs, delays and other liability, known and unknown, arising from or in any way connected with such right, claim or action.

You are solely responsible for your interactions with other Registered Users. We may limit the number of connections you may have to other Registered Users and may, in certain circumstances, prohibit you from contacting other Registered Users through use of the Service or otherwise limit your use of the Service. We reserve the right, but are not obliged, to monitor disputes between you and other Registered Users and to restrict, suspend, or close your account if we determine, in our sole discretion, that doing so is necessary to enforce these Terms.

For as long as we continue to provide the Service, we will seek to update, improve and expand the services which the Service provides to Registered Users. As a result, we allow you to access the Service as it may exist and be available on any given day and we have no other obligations, except as expressly stated in these Terms. We may modify, replace, refuse access to, suspend or discontinue the Service, partially or entirely, or change and modify prices prospectively for all or part of the services it provides to you or all Registered Users in our sole discretion. All of these changes shall be effective upon their posting on the Service or by direct communication to you.

We also reserve the right to withhold, remove or discard any Content available as part of your account, with or without notice if we consider it (in our absolute discretion) to be contrary to these Terms. We have no obligation to store, maintain or provide you a copy of any Content that you or other Registered Users create or provide when using the Service.







You agree to indemnify us and keep us indemnified against any and all claims, damages, losses, liabilities and reasonable costs (including lawyers’ fees and costs) arising from or in connection with your use of and conduct on the Service, any Content which you submit to the Service and your breach of any of the Terms.

If you think that you are entitled or obliged by any applicable law to act in breach of any of the terms or to breach this Agreement, you must give us a detailed and evidence-based explanation of your reasons for doing so at least 30 days before you do so, so that we can consider and decide whether we wish (at our sole discretion) to remedy the situation, although we will be under no obligation to do so.


If you no longer wish to be a Registered User, please contact us.

If we believe that you have not complied with the Terms we may, at our discretion and without incurring liability, cancel your membership and restrict access to the Service immediately and without giving you any prior notice.

Even after termination (for whatever reason) these Terms shall remain in full force and effect.


Any failure or delay by us to enforce strict performance by you of any of the Terms or to exercise any right under the Terms will not be regarded as a waiver of any rights.


If any provision of the Terms is found by any Court, or other competent body to be wholly or partly illegal, invalid, void, voidable, unenforceable or unreasonable, that part shall be deemed to be severable from the Terms and the remaining provisions of the Terms shall continue in full force and effect.


We may provide you with notices regarding the Service or the Terms by regular mail, email, or postings to this website.


These Terms constitute the entire agreement between you and us with respect to the use of the Service and supersede any previous agreements between you and us regarding such subject matter.


We may assign, delegate or transfer our rights, liabilities and/or obligations under the Terms without your prior consent and upon such assignment, delegation or transfer we shall be relieved of any further obligations under the Terms. You shall not assign, delegate or transfer any of your rights, liabilities and/or obligations under the Terms without our prior written consent.


The interpretation, construction, effect and enforceability of these Terms shall be governed by and construed in accordance with English Law. You and we agree to submit to the exclusive jurisdiction of the English Courts.


In the first instance please contact Lucy Scarisbrick with your enquiry via email; Lucy.Scarisbrick@leadershipacademy.nhs.uk or write to us at Yorkshire and the Humber Leadership Academy, Health Education England building, Willow Terrace Road, University of Leeds, Leeds, LS2 9JT.


Please see our Privacy Notice here.

You can contact us at Lucy.Scarisbrick@hee.nhs.uk or write to us at Yorkshire and the Humber Leadership Academy, Health Education England building, Willow Terrace Road, University of Leeds, Leeds, LS2 9JT

These terms and conditions have been adapted from the Knowledge Hub website with kind permission.